You are being invited to take part in some research. Before you decide whether or not to participate, it is important for you to understand why the research is being conducted and what it will involve.
Please read the following information carefully.
What is the purpose of the research?
We are conducting research on the impact of the stereotypical image of an individual with an eating disorder on those considered non-stereotypical. The purpose of the study is to is to examine the themes participants discuss regarding their experiences in areas such as their own perception of their illness, barriers in receiving help and media attention. In order to take part, participants must be aged 18 or over and have a history with the following eating disorders: anorexia nervosa, bulimia nervosa and/or OSFED (Other Specified Feeding and Eating Disorders). Your participation in this study will involve taking part in one interview which will take between 30 and 60 minutes, but there is no time limit.
Who is carrying out the research?
The data are being collected by principle researcher Hannah Champion, in the Department of Psychology, Human and Health Sciences at Swansea University – under the supervision of Dr Rachael Hunter in the Department of Psychology, Human and Health Sciences at Swansea University. The research has been approved by the College of Human and Health Sciences Research Ethics Committee.
What happens if I agree to take part?
You will take part in an interview about your experiences of having an eating disorder, such as your own perceptions of the illness, seeking help, representation, and the barriers you may have encountered.
You will be asked specific questions, although you may choose not to answer any questions you do not wish to. With your permission, your interview will be recorded, which will only be accessed by the principle researcher and deleted once it was been transcribed.
All information you provide will remain anonymous. During the transcription process direct identifiers such as your name, will be replaced with a pseudonym and any other information which may identify you as an individual will also be removed. Your data will be analysed using thematic analyses, but only your pseudonym will be used in the write up of the research. The information you provide will be used anonymously in academic papers and other formal research outputs.
Are there any risks associated with taking part?
The research has been approved by the College of Human and Health Sciences Research Ethics Committee. You may find that participating in eating disorders research to be a triggering experience. Please feel free speak with the principle researcher about any questions or concerns you have at any point before, during or after the research (contact details are below). You may also wish to discuss any concerns with someone close to you, a support service and/or perhaps a healthcare professional. Also please remember that you are free to withdraw from the research at any time before or during the interview. Your health and well being should be the top priority.
Data Protection and Confidentiality
Your data will be processed in accordance with the Data Protection Act 2018 and the General Data Protection Regulation 2016 (GDPR). All information collected about you will be kept strictly confidential. Your data will only be viewed by the researcher/research team.
All electronic data will be stored on a password-protected computer file on the principle researcher’s personal laptop and deleted after completion of the project. All paper records (consent forms) will be stored in a locked filing cabinet in a university office. Your consent information will be kept separately from your responses to minimise risk in the event of a data breach.
Please note that the data we will collect for our study will be made anonymous soon after the interview takes place (i.e. once it has been transcribed anonymously the recording of our interview will be destroyed). Thus, it will not be possible to identify and remove your data at a later date, should you decide to withdraw from the study. Therefore, if at the end of this research you decide to have your data withdrawn, please let us know before you leave.
What will happen to the information I provide?
An analysis of the information will form part of our report at the end of the study and may be presented to interested parties and published in scientific journals and related media. Note that all information presented in any reports or publications will be anonymous and unidentifiable.
Is participation voluntary and what if I wish to later withdraw?
Your participation is entirely voluntary – you do not have to participate if you do not want to. If you decide to participate, but later wish to withdraw from the study, then you are free to withdraw without giving a reason and without penalty. However, please note that should you wish to withdraw, it is advisable you do so before you leave the interview if you do not wish your information to be included in the study findings.
If you would like to participate in this research study please apply directly to Hannah Champion via email firstname.lastname@example.org