Experience of parents of people with an eating disorder

Relationship between compassion and predictors of depression in parents of people with an eating disorder

Name of researcher: Pamela Fox, Trainee Clinical Psychologist

Email: Pamela Fox at p.p.fox406@canterbury.ac.uk

What is the purpose of this research?

The purpose of this research is to explore the wellbeing of parents of a loved one with an eating disorder and see if there are certain experiences you might have as a carer that may contribute to depressed mood. This will help develop a greater understanding of the needs of carers and help develop interventions focussed on supporting carer wellbeing.

Who can take part?
You can take part in this study if you are a parent of someone with an eating disorder.
You also must be over 18 years of age and have a good understanding of written English.

What does the study involve?
The study will involve completing six questionnaires on an online platform. This will take approximately 30-35 minutes. The questionnaires will ask you about different aspects of your mood and thoughts about yourself. You will also be asked to provide some general information about yourself.
As a thank you, you will be given the opportunity to enter into a prize draw to win one of two £50 amazon vouchers.

How can you take part?
To read further information about the study please follow the link
(https://cccusocialsciences.az1.qualtrics.com/jfe/form/SV_6sPalN4b2uJOZtX)
This link will also guide you to the study page if you wish to take part.
If you have any questions about the study, please contact Pamela Fox at p.p.fox406@canterbury.ac.uk

Further Detailed Information about the research

Relationship between compassion and predictors of depression in parents of people with an eating disorder

Hello. My name is Pam and I am a trainee clinical psychologist at Canterbury Christ Church University. I would like to invite you to take part in a research study. Before you decide whether to take part, it is important that you understand why the research is being done and
what it would involve for you.

Talk to others about the study if you wish.

(Part 1 tells you the purpose of this study and what will happen to you if you take part. Part 2 gives you more detailed information about the conduct of the study).

What is the purpose of the study?

This research will be exploring your (a parent and carer of a loved one with an eating disorder) wellbeing and seeing if there are certain experiences you might have as a carer that may contribute to depressed mood. This will help develop a greater understanding of the needs of carers and help develop interventions focussed on supporting your wellbeing.

Why have I been invited?

You have been approached for this study because I am interested in understanding your experience and needs as a parent and carer of someone with an eating disorder.

Do I have to take part?

It is up to you to decide whether to join the study. If you agree to take part, I will then ask you to sign or provide electronic consent depending on how you would prefer to complete the study, on paper or online. You are free to withdraw at any time, without giving a reason.

What will happen to me if I take part?
If you agree to take part you will be asked to sign the consent form attached to this information sheet or follow the link below to be forwarded to this information online followed by a consent form.
This is to acknowledge that you have read these guidelines and understood the purpose of the study. https://cccusocialsciences.az1.qualtrics.com/jfe/form/SV_6sPalN4b2uJOZtX
There will be six questionnaires that will take you about 30-35 minutes in total to complete. You will also be asked to provide some general information about yourself. I am interested in your views so therefore it is important that you complete the research pack on your own.
At no point on any questionnaire will you be asked to provide your name or any identifiable information. The written and online consent forms will be separated from the completed questionnaires. Your responses will therefore remain anonymous.
Once you have completed all the questionnaires please place them in the envelope provided and seal it. If you are completing this at the carers support group please return them to me. If you are completing them at home, please return the completed research pack in the stamped addressed envelope provided. Alternatively please use the online
questionnaires as advised.

What are the possible disadvantages and risks of taking part?
It is not anticipated that any physical or psychological harm will occur from participation in this study. However, providing care can be a stressful activity and some of the questions may make you more aware of these difficulties.

What are the possible benefits of taking part?

Your views will help develop the understanding of carers’ experiences and needs. The information you provide will contribute to my research thesis. The findings will hopefully be published in an academic journal. You will be asked at the end of the study to provide your email address if you would like to receive a summary of the findings.

As a thank you, you will also have the option to enter into a prize draw to win one of two £50 Amazon vouchers for completing the research pack.
What if there is a problem?

Any complaint about the way you have been dealt with during the study or any possible harm you might suffer will be addressed. The detailed information on this is given in Part 2.

Will information from or about me from taking part in the study be kept confidential?

Yes.

Answers you provide to the questions will be kept separate from your consent and contact information if you have provided this (i.e. to receive a summary of results and/or prize draw).

Therefore, your answers will remain anonymous.

We will follow ethical and legal practice and all information about you will be handled in confidence.

This completes part 1.
If the information in Part 1 has interested you and you are considering participation, please read the additional information in Part 2 before making any decision.

Part 2 of the information sheet What will happen if I don’t want to carry on with the study?

If you withdraw from the study, we would like to use the data collected up to your withdrawal.

Complaints

If you have a concern about any aspect of this study, you should ask to speak to me and I will do my best to address your concerns. You can contact me by leaving a message on the 24-hour voicemail phone number 01227 927070. Please leave a contact number and say that the message is for me [Pam Fox] and I will get back to you as soon as possible. If you remain unhappy and wish to complain formally, you can do this by contacting The Research Director, Professor Paul Camic on 01227 927114.

Will information from or about me from taking part in the study be kept confidential?

  • All information which is collected from or about you during the course of the research will be kept strictly confidential.
  • All data will be stored at the University for 10 years (in locked storage if completed offline and on a password protected computer if completed online).

What will happen to the results of the research study?
It is my intention to prepare these findings to be published within an academic journal.
However, prior to this, if you have provided your email address with the intention of receiving a summary of results then these will be sent to you. If you have taken part in this study at your local support group I will send a summary results there. The results of the study will also be made available on the study website: https://cccusocialsciences.az1.qualtrics.com/jfe/form/SV_6sPalN4b2uJOZtX

Who is organising and funding the research?

This study is being funded by Canterbury Christ Church University as part of my training towards becoming a clinical psychologist.

Who has reviewed the study?

All research in the NHS is looked at by an independent group of people, called a Research Ethics Committee, to protect your interests. This study has been reviewed and given favourable opinion by The Salomons Ethics Panel, Salomons Centre for Applied Psychology, Canterbury Christ Church University.

Further information and contact details:

If you would like to speak to me and find out more about the study or have questions about it answered, you can leave a message for me on a 24-hour voicemail phone line at 01227 927070. Please say that the message is for me [Pam] and leave a contact number so that I can get back to you. Alternatively, you can email me; my email address is
p.p.fox406@canterbury.ac.uk